9th Grader Brandon Joseph Receives the Debra of America Spirit Award
9th grader Brandon Joseph was named a recipient of the Debra of America Spirit Award for his advocacy work on behalf of those living with Epidermolysis Bullosa. At the award ceremony, Debra acknowledged Brandon’s powerful testimony from an FDA patient-focused drug development panel, in which he and others advocated for expedited Epidermolysis Bullosa treatments.
EB is a painful and debilitating disorder that causes the skin to tear and blister at a slight touch and requires daily bandaging of wounds. The condition can also affect internal organs. By sharing their personal struggles with EB, Brandon and the other patients and family members were able to help the FDA better understand the daily physical and mental challenges of the disease and advance treatment approvals.
Back
EB is a painful and debilitating disorder that causes the skin to tear and blister at a slight touch and requires daily bandaging of wounds. The condition can also affect internal organs. By sharing their personal struggles with EB, Brandon and the other patients and family members were able to help the FDA better understand the daily physical and mental challenges of the disease and advance treatment approvals.
New Roads School is a college preparatory K-12 private independent school in Santa Monica, CA, serving over 514 elementary school, middle school and high school children from the greater Los Angeles area. New Roads School provides an inspired educational program from which an authentically diverse student population, mirroring the rich diversity of Los Angeles, develops a personal dedication to learning, a respect for independent thinking, and an expanding curiosity about the world and its people.
NOTICE OF NONDISCRIMINATORY POLICY AS TO STUDENTS New Roads School admits students of any race, color, national and ethnic origin to all the rights, privileges, programs, and activities generally accorded or made available to students at the school. It does not discriminate on the basis of race, color, national and ethnic origin in administration of its educational policies, admissions policies, scholarship and loan programs, and athletic and other school-administered programs.